My Mom suffered a stroke and has been diagnosed with Locked-In Syndrome. I have dedicated a blog to the syndrome and will include some of my personal experiences. This syndrome deserves more recognition. While rare, the condition, which can be caused by other factors other than stroke, might be more common than research articles suggest. Also, the understanding of the syndrome by some health care providers can be limited and/or biased. So, I plan to build a resource blog for those who live or encounter the condition.
Here's a link to my new blog:
Locked-In and Living
Sorry to read this about your mom, Bill. I am familiar with Locked-In syndrome. I send my best for her recovery. I actually just heard an interesting conversation on NPR about LI today. Not sure what program it was on. I was in between clinics and just caught a little of it. You take care of yourself, too. Very important thing to do.
ReplyDelete